patient information

CBD is a rare neurodegenerative disorder belonging to a class of diseases called taupathies. The name taupathies comes from the fact that one can see, in the  brains of CBD patients, accumulation of toxic protein aggregates of a protein called tau. Current research is focused on different ways to remove or reduce the amount of the aggregated tau.

Early symptoms of CBD often overlap with those of Parkinson's disease (PD). There are other neurodegenerative disorders that share this symptom overlap, namely progressive supranuclear palsye (PSP), multiple system atrophy (MSA) and dementia with lewy bodies (DLB), and these diseases are therefore called atypical parkinson.

CBS Solutions sponsor development of a CBD patient registry in EU.  The purpose of this registry is to support clinical research in CBD and to facilitate future clinical trials. If you are interested in participating or would like further information please contact Dr Ruth Lamb at UCL in London (ruth.lamb@ucl.ac.uk).

We have been approached by CDB patients and caregivers who want us to emphasize the importance of physical exercise to prolong longevity, decrease falls, and promote stability of functions.

The positive effects of physical exercise are supported by published data, although CBD patients often need to be cautious about the risk of falling (see paper Steffen et al 2014). We therefore recommend that you contact your physical therapist to set up a training program that fits your needs, within. Read more about this

Below we have summaerized various links on CBD related questions and support for patients and cares.